Done... Right?

At this point, I thought there was nothing the oncologist could say that would disturb me. I’m in the final stretch, after all. A month ago, perusing the mail, much less responding to emails, was overwhelming. My to-do list was a reproach on paper, for I had not the energy to visit the attic, much less sift through old paperwork, organize shelves and haul bags of cast-offs to Goodwill. I would make it through my workday and head home exhausted; running errands or attending a meeting afterwards was not a possibility.

Gone now the lethargy of those chemo days. I’ve straightened the attic and made that Goodwill run, relishing the pleasure of pounding feet and powerful legs with each dash up the stairs. After a day of work followed by a trip to the dry cleaners and the grocery store, I can’t help but smile when I arrive home, sling my purse over my shoulder, grab a shopping bag in one hand and a full complement of clean shirts in the other, then nudge the car door shut with my hip.

But for my edgy-lesbian butch hairdo, I’m back.

This busy, competent Lea is a much-missed old friend and oh, I welcome her! My chemo treatments ended in November, thank god, and the Herceptin drips, which will continue until August, have no side effects. I feel great and, to all intents and purposes, I am done with this cancer.

So I thought.

During my last visit, Dr. Lawden called me from the infusion room into his office for a consultation. I sat in a beige chair, my IV stand with its bag of fluid tethered to my chest by a thin plastic tube. The doctor asked about neuropathy, or numbness of the hands and feet, which I was delighted to report, was not an issue. “Still active?” he asked as if perhaps, despite his directive that I exercise forty-five minutes a day, I’d opted for indolence. I nodded, masking a mental eye-roll.

We discussed diet and sleep patterns and he checked my fingernails. I haven’t bitten my nails since I was a kid, but another charming chemo manifestation is wavy, peeling nails. Who knew? I find myself gnawing away like some anxious teen and my nails look awful. “Part of post-chemo recuperation,” he said.

With mutual smiles and the closing of a manila file, we wrapped up. I was on my way down the hall, pushing the IV stand before me, when he called, “Lea! Wait! I forgot to discuss the main purpose of our consultation.”

I had no reason to be suspicious.

“We need to talk about hormone therapy once your treatments are over,” he said.

“Hormone therapy?”

“Yes. Chemo is generally followed by a course of Tamoxifen.”

I’d heard of this drug, but it had nothing to do with me. I was done. I thought that after surgery and chemo any cancer that had a chance in hell of causing a problem was banished. I should have learned from all of this, however, that nothing is certain.

I am not one to talk back or question, and certainly not to a doctor, but I’d had enough of bad news and flattened spirits. “No one mentioned further treatments,” I said, my arms crossed defiantly across my chest.

My tone must have given him pause, for he said, “I thought I’d covered it; sorry if I didn’t. You’ve had a lot to absorb. I’m going to research your case some more. Weigh the risks and benefits…”

“Risks?” I cut in.

“Yes, well. As I said, I’m going to study your case and then we’ll review the specifics of maintenance.”

Maintenance? Damn.

Glad I Had That Mammogram

It’s been a week since my surgery. I feel so good as I strut in for my follow-up appointment with Dr. Philipson that I practically high-five the receptionist. Theresa, the doctor’s nurse, sticks her head out into the hallway and I zip over to give her a hug. I am all smiles and she is warm and calm as always. Maybe she seems a little sedate, in fact, but I write it off as her way.

Dave and I take a seat in the waiting room and I beam at the women who are flipping through magazines, glancing up at the approach of footsteps, fingering the clasp of a pocketbook, each with her own fear and story. In my near-giddy state as one who has made it through surgery and is healing like a champ, I want to assure them that they’ll be fine. That they’re in the best hands possible and that the anesthesia cocktail is a dream. That recuperation hurts a bit, but the medications soften the edge. And that, if their people are anything like mine, they’ll be cared for with unbounded love.

Speaking of my people, Mom and Dad are coming for the weekend. They’ll probably beat us home in fact. Phone assurances have been inadequate; they want to see me for themselves. Like Dave, Mom has said, “I wish I could do this in your place,” but she will see that I don’t need a surrogate; I’m great and she needn’t worry.

When my name is called, Dave and I hop from our seats and saunter down the corridor to Dr. Philipson’s office. I give her a hug too, but her eyes do not reflect my jubilation. We sit across from her and I don’t really follow what she is saying about “micro-invasive cells.” I’m still smiling because the significance does not register. My lymph nodes were clear. The cancer is out. What more is there?

Apparently, the pathology on the breast tissue revealed something else. Cells that could send out seedlings. Cells that require preventative action. “The good news is that a drug, Herceptin, has been made available within the last two years that targets these specific cells,” says Dr. Philipson.

Wait. She’s saying it doesn’t end here. She’s talking about chemo. Scarier than cancer. Chemo.

“You did the right thing in having the double mastectomy,” she concludes. “but I know this is not what you expected. I’m so sorry.”

I am slow to process her words. I think about what might have happened if I’d not had that mammogram. What might have happened if I’d not gone for the double. What might have happened if the medical world had not continued to paw through my breast tissue in some lab somewhere even after removal.

I could have died.

But I don’t feel relieved. I’m thinking about chemo. And I’m thinking about Mom and Dad waiting at home for me to come dancing through the back door, maybe minus a drain or two, to be doted on. Again, I must tell them hard news.

We leave the office and I call my parents by cell phone. I tell them about Herceptin – so new, so specific to my case – and remind them that all of the other good stuff still holds true – early stages and clear lymph nodes and margins.

Mom and Dad rush out of the house as our car pulls up. They are somber, but glad to hold me, to see me. To see that I’m the same, minus a few body parts.

For lunch, we sit on the back porch and pick at a platter of tuna chunks, olive tapenade, roasted peppers, artichoke hearts, cheese and Italian bread. The food tastes fresh and tangy, but it’s hard to sit still. I restrain myself through the meal, then say,” I’ve gotta make a few calls.”

I fly upstairs to call Wendy. She had a double mastectomy two years ago and has been a voice of experience and comfort since I was diagnosed. She did not have chemo herself, but says, “Lea, I know many women who are going through treatments now. We still walk together; they go to work, they feel okay. There’s some fatigue, but they’re not sick. They look great. This is a disappointment, but you’re going to be fine and chemo will make sure of that.”

Okay. Good. Thanks. Breathe. Breathe.

I call Joanne.

Joanne had a double mastectomy thirteen years ago. She did have chemo. And she has a spirit that barrels through that phone line to hug me and lift me up.

“You want this, Lea. Believe me. You don’t want little cells floating around making trouble. Chemo’s so different now. You won’t throw up. I know you won’t. You’ll be tired maybe, and then you’ll be through this and you’ll be fine. You want this.”

I want this. Well, not exactly, but Wendy and Joanne have said the right things and I can breathe again. I am fortified. And I can go back to the porch and tell Dave and my parents what my two friends said and I can say it with cheer and confidence. And they will believe me as I believe Wendy and Joanne.

More About Love Than Disease

Dave bends over one of four turkey-baster-like bulbs suspended in white cotton sacks from the imposing fifties-style bra that protects my new scarred, but implant-enhanced, breasts. Each rubber globe is attached to a two-foot long drain that snakes from my side. It is Dave’s job to “milk” the tubes and measure whatever fluid has collected. This will be an exciting new phase of our relationship.

Some men might shirk from such a task. Not my husband. A failed chemistry exam his junior year in high school crushed his hopes of being a doctor. He is positively giddy about exercising those untried medical skills.

His eyes are bright behind wire-rimmed glasses as he extracts bulb #1 from its pouch. He has drawn up a chart, to be typed later, with blocks to be filled in with dates, times and fluid amounts. My plastic surgeon is a babe – a babe he’d like to impress – and surely his attention to detail will not go unnoticed. Of course, he wants to take good care of me as well.

As he squeezes the tubing through his thumb and forefinger, I wince, anticipating a tug, but he is very gentle. He holds the bulb, trailing its accompanying drain, up to the light so we can study the level of liquid.

“What do you think?” he asks.

“Um, 32?’

“Maybe it’s closer to 34,” he says, writing down that number on the chart.

This is not an exact science.

He repeats the process three more times. Our heads are bent close together, both of us watching his fingers and the movement of pink fluid through the tube.

I love Dave’s hands. Where both of us show our age in graying hair and lined skin, his hands haven’t changed in the thirty-seven years we’ve been together. They are strong and boyish, olive-skinned, and I have kissed those hands many times in the past few days after they’ve plumped my pillows, placed on my lap a tray of juice and melon garnished with a green sprig of fresh mint, helped me dress, washed my hair.

“I wish I could do this for you,” he has said of the cancer and surgery. “I wish it were happening to me instead.”

I know what he means. I know he hates the fact that he could not protect me. But, oh, I am grateful for the roles Fate has allocated. I can do this. I could not stand to watch Dave or one of our children endangered.

Many people, after asking how I’m doing, will ask, “and what about Dave? Is he okay?”
He has a good game face, and I think it’s sincere for now. My prognosis is excellent and now that I’m home, he can contribute to my well-being. “I can’t have the disease for you, but I can keep the house clean, cook, and take care of you.” He is the best of men.

When we were younger, often he’d wake to the sound of me sniffling into my pillow because I’d brought myself to tears in imagining him lost to some disaster. “How did you kill me off this time?” he’d ask in a voice of kind resignation.

I’d bawl, embarrassed that I’d bothered him, but glad, so glad, to have him with me, alert and well and whole, in our bed. “A car accident,” I’d sob. “The police had just called and I asked Steve to go with me to the hospital.” This happened more times than I care to confess. Dave would always pull me close and nuzzle my hair, kiss my cheeks, and say, “It’s not going to happen. I’m not going anywhere.”

It was as if I were practicing, hoping that if I lived through enough of the calls and funerals in my mental-movies, I’d be able to deal with it better when I had to. I’m not sure what made me stop those sad fantasies. As we got older, perhaps I worried I was putting too dangerous a possibility out to the Universe.

After the bulbs are empty, we go downstairs and Dave sets me up on the back porch. He arranges a backrest of pillows on the wicker loveseat and brings me a glass of ice water with a wedge of lemon on the rim. I write a few thank you notes while he does a crossword puzzle. I read a little. Some friends stop by. After an hour or so, I feel as whiny and petulant as a child needing a nap. It’s all I can do not to cry. I look desperately at Dave and catch his eye. He rises from his chair saying, “Great to see you! Lea needs to head in for a rest now.”

A new phase of our relationship indeed.

After I give good-bye hugs and kisses, Dave walks the guests to their car while I head inside and upstairs. I stop in Casey’s room to fetch her pink bunny from the top of her closet. I’d put him away soon after returning from the hospital in the belief that I didn’t need him anymore. Guess I was wrong. It still hurts to stretch my arms, but I want Pink Bun, so I stretch anyway and then shuffle to my bed clutching the flannel rabbit just like sleepy Casey used to do as a toddler.

Our bedroom is brilliant and aromatic with the colors and scent of countless flowers. Yellow roses, lavender irises, sunflowers, delphinium, lilies, snapdragons. A garish royal blue feather boa is draped over one window – a gift from my friend Gail who demonstrated with a flourish: “When people ask how you’re doing, flip the boa dramatically over your shoulder and say, ‘I feel marvelous!’”

A photograph of a sandy beach, with cobblestones arranged to form “LEA,” is on my bureau. I cried when Hallie gave it to me. So thoughtful, so enduring, my name in stone.

A teddy bear from our neighbors sits in the window, a healing angel from Sharon on my bedside table. I’ve received books, pajamas, meals, pies and brownies. Every day, Dave serves me a plate of daisy-shaped melon and pineapple, remnants of several “Edible Arrangements” from dear friends. A wooden bucket next to my bed is crammed with cards, not only from those I love, but some from my sister’s friends, from Carey’s friends, from relatives I rarely see, from acquaintances I know only from committees and meetings. I have been embraced and buoyed by waves of kindness.

But right now, I feel lonely and sad. I wish Dave were here.

He is downstairs, playing the piano ever-so-softly. Is he playing for fun or a lullaby for me? The song is Tom Waits’ “Serenade,” one of my favorites. I think of this song as the sound track of our lives: it is beautiful and poignant and Dave plays it often. I hold Pink Bun close and sniffle at my good fortune in all the love that surrounds me, and in this dearest of men at the piano.

“Serenade” ends and he shifts to something else. The melody is familiar; what is it? He’s playing it slower than usual, soulful, heart-felt. Ah, it’s The Beatles’ “She Loves You.”

Since my return from the hospital, as Dave has bustled about, joyfully bearing the newest lovely arrangement to my side, vacuuming, or making the bed, I have said, “Honey, do you know how much I love you?” He always says yes, but too often in taking him for granted, I’ve been snappish and dismissive. Does he see beyond that?

The piano is quiet. I hear footsteps on the stairs. As if he’s felt the pull of my loneliness, Dave has come to me. We smile at each other as he enters the room.